Krabbe Disease
February 28, 2016
Little Levi Wibberley captured many hearts, including that of celebrity chef Manu Feildel, when his parents went public about his battle with Krabbe Disease. Sadly, he succumbed to the illness in May 2015, but Ashley and Ben Wibberley continue to raise awareness of this and other rare diseases. Krabbe Disease is one of approximately 7,000 rare diseases, 50% […]
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May 13, 2015
Levi’s Legacy
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This week we are grieving the loss of little Levi Wibberley, the beautiful Perth boy who has touched the lives of many, and whose story I shared as one of the very first posts on this blog. Levi was born with Krabbe disease, a rare degenerative disorder, and passed away in the early hours of Wednesday 6 May 2015, aged […]
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August 15, 2014
Levi’s Leukodystrophy Battle
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Meet Levi. This cheeky little Perth boy is about to celebrate his first birthday. He loves Mickey Mouse, music and cuddles with his grandparents. Levi’s young parents Ashley and Ben Wibberley should be looking forward to a long list of firsts: first steps, first day of school, first bike ride. But as they plan a […]
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